I am a husband, father, son, brother, uncle and friend. I believe in sharing my talents and experiences by giving back to the community by giving my time to coaching, church and especially to the disability community. I truly believe that all men and women are created equally.
Remember what it was like going to your 10 year reunion? Classmates are now married, parents, balding, graying, any number of physical things have changed in those 10 years. By now, most classmates have embarked on a career, in a lot of cases not what you would have expected from this person.
Now imagine you are not invited to the reunion because you were sort of forgotten about. You did not build meaningful friendships in high school because you had a disability. Again, the highlight of your day 10 years ago was a simple hello and smile. The classmates that remember you are your siblings friends. They had some social interaction with you. The true friends will ask your siblings how you are doing on a regular basis.
Here are comments from other individuals in regards to Caps on Family Care
I have just begun working after my own 10 year hiatus due to disability. Without community support for my son, I'm afraid of what might happen.
I am the mama with a child with Intractable Epilepsy, Autism, Speech and Language deficits, Severe cognitive impairments, and Severe Sensory Integration Disorder. Right now my son still lives at home. The town where we live doesn't have the capabilities to help us or my son much less any other young adult with Autism. As my son gets older physically, he regresses mentally. He has 7 older sisters and brothers but they want nothing to do as far as caring for their brother and neither my husband nor myself have any family to care for my son. This means I have to find somewhere and something for my son BEFORE my husband and I die. Without any long term assistance programs available my greatest fear is that my son will end up locked away somewhere where nobody will love and care for him and help him to be a contributing member of society, such as it is!!! With all the assistance programs being eliminated who will care for Americans like my son and those like him?? Certainly not some rich fat-cat senator of governor!!!! Is this right? Is this fair? The answer is most definitely NO!!!!! Oconto, Wisconsin
Wisconsin Families Forward Press Event Thursday June 9th
This is an important message for families with young individuals with disabilities.
Wisconsin Families Forward
We head into the budget debate with bated breath, not knowing if the services that so many have come to rely on will be continued for people with disabilities. A two year freeze could mean waiting lists growing to the point that it may take over 10 years for individuals to access the assistance they need. I found it ironic as I led a press event at Independence First last week to hear from families and how they would be affected by placing a cap on Family Care and related programs, that Governor Walker was participating in a Special Olympics event. Governor Walker called these athletes angels. The first speaker commented that if Governor Walker thinks of these athletes as angels, than why is he cutting their wings.
Over the last couple of weeks, I have talked about the importance of Family Care to families with loved ones with disabilities. I have seen first hand the importance of these programs to allow people to live in their home, a much less expensive option than going to a nursing home.
In the next couple of weeks, there will be plenty of opportunities to meet individuals with disabilities in Cudahy.
Every Saturday from 8:30-9:30 at Ladish Park, The Cudahy St Francis Little Baseball Association holds their Challenger League. The games run through July. This is your opportunity to come and watch up to 25 kids and their families and friends participate in the National Past Time. Come and watch kids playing baseball because they want to and are enjoying themselves.
I would like to wish my Dad and all of the dad's out there a Happy Fathers Day.
I look forward to spending a day with my kids and they will actually listen to me.
Good afternoon Governor Walker
While sitting in Church this morning, I spent quite a bit of time reflecting on how lucky I am to be able to be a father on Father's Day. I looked at my 3 kids, proud to be their father and started wondering what directions their lives will be taking in the coming years.
When I got to my oldest son, a 13 year old with endless dreams, I had thoughts on how we are going to be able to assist him to achieve those dreams. My son Tyler, as a dual diagnosis of Down syndrome and Autism. It was just one year ago on Father's Day that Tyler served his first Mass. With minimal assistance, Tyler has become an excellent altar server. He looks forward to it on his once a month schedule.
I was talking with families this weekend after our Challenger Baseball game, their biggest fear is who is going to help their children when they become adults. Most agreed that all their children need is some minimal assistance to be able to achieve their goals.
As an IRIS Consultant, I see everyday how this program is assisting individuals be able to live out their dreams. Individuals are living in their own homes, attending social events, working, exercising and spending their own money on consumer goods. All they need is some minimal assistance.
I am asking you to please remove the caps on Family Care from the State Budget. These programs are an integral part of the lives of so many Wisconsinites. By placing a cap on the programs, too many people will have to wait to get services and the chance to live out their dreams.
You have been a strong proponent of Family Care over the years. You were even quoted saying "If I did nothing else, I wanted to make sure Milwaukee County expanded Family Care to people under the age of 60 with developmental & physical disabilities, so that they in turn could see that waiting list eliminated like we did for older adults in this community."
Thank you for your consideration on this important issue to me and my family, along with many families across Wisconsin.
All are welcome to a Rockin Picnic this Saturday June 25th from 11:00 to 5:00 on the front lawn of the Marian Center for Nonprofits, 3211 S Lake Dr St Francis. Free DJ, Dancing to the 50's, Games for Kids, Yoga Demonstration, Food by Mangia Mangia, Drinks, Snacks, Raffles, Pull Tabs, Trivia for everyone.
Sponsored by Clare Oasis and the Down Syndrome Association of Wisconsin. All proceeds will positively impact the programs, services and advocacy for Children with Different Abilities, At-Risk Youth and the Wisconsin Down Syndrome Community.
The Lose the Training Wheels Bike Camp is this week at Cudahy High School from about 8:00 - 4:00 every day this week. The camp teaches individuals with varying disabilities to transition from a bike with training wheels to riding on only 2 wheels in one weeks time.
The camp is co-sponsored by The Down Syndrome Association of Wisconsin and The Autism Society of Southeast Wisconsin.