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Why Not

I am a husband, father, son, brother, uncle and friend. I believe in sharing my talents and experiences by giving back to the community by giving my time to coaching, church and especially to the disability community. I truly believe that all men and women are created equally.

Special Olympics Summer Games

“Let me win. But if I cannot win, let me brave in the attempt.”

This is the Special Olympics Athlete Oath.  Last week, I was sitting amongst 2000 athletes and I heard them recite this oath prior to the opening of the Special Olympics Summer Games at UW Stevens Point.  My son qualified in the Softball Throw and the 100 meter run.

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The ABCD Approach to Community

Last week, as part of my continuing education, I participated in ABCD (Asset Based Community Development) training.  As part of my last Partners in Policymaking class, we were reminded that the welcoming community already exists (even if we don’t always see it) and it’s waiting to be activated under the surface of your neighborhood, school, workplace, church and synagogue.  You can activate, nurture, reinforce and deepen it, but only if you believe in it.  While the contexts of both were related to the disability world, I couldn’t help but think of my community, Cudahy, and how this all relates.

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Olmstead v L.C. Anniversary

From the US Department of Justice

This week marks the thirteenth anniversary of the Supreme Court’s decision inOlmstead v. L.C., where the Supreme Court recognized that the civil rights of people with disabilities under the Americans with Disabilities Act (ADA) are violated when they are unnecessarily segregated from the rest of society.  The promise of Olmstead is that people with disabilities will have the opportunity to live like people without disabilities – to have friends, work, be part of a family, and participate in community activities.  As the Department of Justice commemorates the anniversary of the Olmstead decision and reaffirms our commitment to its enforcement, we are pleased to present “Faces ofOlmstead,” a website profiling stories of some of the thousands of people whose lives have been impacted by the Olmstead decision and the Department’s enforcement efforts. 

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Partners in PolicyMaking - Final Session

Hard to believe those 6 months can go so fast. I am now a graduate of the inaugural Partners in Policymaking class in Wisconsin. 

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How the Affordable Care Act Helps Individuals with Disabilities

For Immediate Release: June 28, 2012

Survival Coalition of Wisconsin Disability Organizations Says Health Care Law Provides Important Protections to People with Disabilities
Contact: Survival Coalition Co-Chairs
Maureen Ryan, Wisconsin Coalition of Independent Living Centers, Inc.; 608-444-3842 
Beth Swedeen, WI Board for People with Developmental Disabilities; 608-266-1166
Tom Masseau, Disability Rights Wisconsin; 608-267-0214
Wisconsin residents with disabilities had a lot riding on today’s Supreme Court decision on the Affordable Care Act, and the state’s largest disability coalition is announcing strong support for today’s decision ensuring key protections. 
“The Court’s decision will ensure that health insurance companies cannot deny coverage based on pre-existing conditions or discriminate based on an individual’s health status,” says Tom Masseau, Disability Rights Wisconsin Executive Director. “These protections are 
huge for people with disabilities who face major obstacles to getting healthcare.” Preexisting condition protections are currently in place for children and will go into effect for adults in 2014.
The ruling also affirms the importance of services and protections for individuals with 
disabilities through access to habilitative and rehabilitative services and devices, mental 
health and substance disorder services, preventive and wellness services, chronic disease 
management, and basic services for children, such as vision and dental care. It also 
continues to lower the costs of prescription drugs for people with disabilities and extends 
and enhances the Money Follows the Person program, which has helped people move out 
of institutions and into less costly, more independent community-based settings.
Pre-existing condition protections and caps on lifetime limits are particularly significant for people with disabilities and families with children.  Nearly one of every seven children under 18 years of age in Wisconsin has a special health care need. The 2009-10 National Survey of Children with Special Health Care Needs shows that nearly a quarter of Wisconsin families with a child with a special health care need have a condition which causes a family member to cut back or stop working, and one fifth report trouble accessing care. 
“The assurance of coverage for people with disabilities in the private market means many people with disabilities will be able to pursue increased work hours  and rely less on Medicaid for their health care because they won’t be afraid of losing that safety net,” says Beth Swedeen, Executive Director of the Wisconsin Board for People with Developmental Disabilities. “Access to affordable, quality health care allows people with disabilities and their families to work and have active lives because they can manage their illnesses and conditions without going into financial distress.”
Insufficient insurance coverage and limited access to affordable, quality health care currently prevents many people with disabilities from obtaining the care they need. When individuals go without care, they are often left unable to work, wait too long to see a doctor, and subsequently utilize expensive emergency room and crisis services.
“Wisconsin has been a leader in progressive and bi-partisan health care policy and coverage of its residents,” says Maureen Ryan, Executive Director of the Wisconsin Coalition of Independent Living Centers. “We look forward to working with policymakers to implement the Affordable Care Act in our state in a way that keeps Medicaid sustainable and provides adequate coverage for people with disabilities.”
Current data shows that in Wisconsin, since some of the law’s provisions have been in place, approximately 43,000 Wisconsin young adults, including those with disabilities, have been able to continue their coverage on their parents’ policies and 94,700 children have been protected from being dropped from coverage due to pre-existing conditions.

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